WE ARE DONE (for now)!
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NO MORE CHEMO! Yesterday was officially my last dose. While I still have a table full of other meds I’ll still have to take, the daily poisoning that I’ve endured for the past two-plus years is over! I want to give a HUGE THANK YOU to Kat and everyone else who has endured and put up with me over this less-than-fun journey. This is a trip that I do not care to repeat, ever, though that is, in reality, highly unlikely. Still, my oncology team is convinced that my numbers have been good enough for long enough that we can consider my leukemia to be in remission! PARTY TIME!
Well, okay, maybe hold up on that party thing a little bit. The doctor was careful to explain that being in remission doesn’t mean I immediately stop showing symptoms. Doing daily chemo for over two years means I have a lot of the drug in my body. The poison isn’t going to suddenly go away just because I stop adding to it. Recovery from the drug could take just as long as the chemo did, and there are some symptoms, such as chronic fatigue, that may never go completely away.
One of the things the doctor warned about was symptoms seeming to disappear for a while and then suddenly returning without any warning. While nausea and night sweats are the symptoms most likely to reappear, he warned that I should always keep my cane handy because there’s no way of knowing when my muscles might decide to shut down and stop working. He said the symptoms can also mimic a cold or the flu. Should such symptoms reappear, he requested that I call the cancer center before calling my GP to consider whether what I’m experiencing might be a leftover from the chemo.
What does ‘being in remission’ mean if I’m still going to be just as sick? Let’s start here:
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The doctor emphasized that there is no way to be absolutely sure that CLL is in complete remission. There is a test that can be done with a bone marrow sample, but it is still considered highly experimental as no one is quite sure what to do with the results. As a result, he recommended against the rather painful procedure. Instead, I’ll do quarterly check-ins with the nurse practitioner, and as long as those pesky numbers don’t start to climb again, we’ll assume that the remission is holding.
There’s also no way to accurately predict how long the remission might hold. Five years is pretty much the max for most people, but there’s always the chance it could be as little as six months. His recommendation was pretty standard: get plenty of rest, eat well, exercise when I can, and avoid any serious stress. Apparently, the doctor hasn’t been reading a lot of news lately.
In the meantime, I have a fine needle biopsy of a nodule on my left thyroid this morning. My anxiety wishes that Kat could be there with me, but she has other things to do and, by any means of accounting, this is a rather low-risk procedure. I just have to stay completely still.
HAVE YOU MET ME?
I don’t think I’ve ever stayed completely still for anything! A local anesthetic will be used, and then they carefully poke a needle into my neck. I can’t imagine anything going wrong there, can you? I’m told the whole thing shouldn’t take more than two hours, and then I can come back home and sleep off the anesthetic.
Having a nodule is not necessarily indicative of yet more cancer. Should the biopsy come back positive, thyroid cancer is typically handled by an endocrinologist, not an oncologist. Same building, different floor, different doctor. The nodule has sat there untreated for the past two years, though, so chances lean more toward it being benign.
Where do I go from here? Assuming the whole thyroid thing is a nonissue, I have an appointment with the neurologist that may be rather involved. There could be a surgery or two involved there. I’ll need to see a urologist again, and there could be a surgery involved there as well. I still need to be in an assisted living facility, but as Medicare/Medicaid budgets get tossed around, who knows when that might happen?
A part of me wants to get back to work taking pictures again. I would have to make a lot of adjustments, though. I need to be able to sit down more often than standing. Indoors is better than outdoors. No extreme weather in any direction. No chasing breaking news stories. For that matter, probably no chasing static news stories. Still, I feel like the photo ideas have just been piling up for the past three years. I want a camera in my hand again.
For now, we’ll just worry about this whole FNA thing, get through it, then chill for the weekend. I’m sure next week will bring a whole new set of problems. There’s never any shortage.
So, who’s down to party?
Sunday, January 26, 2025
Being About The Land.
With everything that’s going on in the world at the moment, I’m going to assign you some extra reading. You don’t necessarily need to do so right at this moment, but given that it’s Sunday and you likely didn’t have anything better planned, this seems like a good time to cover some things I simply don’t have time to write about. I try to keep morning updates between 300-1,000 words. If I go over 1,000 words, which I did three times this past week, it gets labeled as a ‘long read.’ Think of this as the background reading you might do before a college lecture.
Any of those articles are worthy of their own commentary and exploration, but I only have one post in me per day anymore. The need for brevity is not pleasant. I’m a strong advocate of long-form writing. Brains don’t retain headlines. To understand the world and the things going on in it requires volumes of information from multiple sources. Please, take the time to read and share. Sharing this post and its related articles helps keep others informed as well.
Just about the time I think I have a grip on my life and everything going on around it something always comes up and puts me back in bed. If previous experience is any indicator, I’ll be getting in extra mattress time for the next two weeks or so. Somewhere in there, we should have a biopsy for that three-centimeter nodule on my left thyroid. At least, it was only three centimeters two years ago; we’re hoping the damn thing didn’t grow. The ‘luxury’ of this time is that I get to lie there and ponder deeply the many challenges we’re facing. Our house isn’t being bombed. We’re not forced to relocate (yet). Compared to much of the rest of the world, we’re reasonably safe. However, recent events indicate we should take on a preparedness approach that is more aggressive than what we’ve done in the past.
In the past, I’ve looked at survivalists as some form of doomsday extremists. Kat’s mom has a survivalist thread to her cloth and we quietly laugh about her stockpile of dried foods and meals-ready-to-eat (MREs). She’s not as severe as those who build deep bunkers and have enough water stored to get them through nuclear fallout, but she takes the matter seriously and keeps her rations fresh. Given the events of this past week, I’m beginning to think that she’s not as reactionary as we’ve believed. Perhaps taking on more of a survivalist mindset would serve us all well.
Fueling the survivalist thoughts this morning are Felonious Punk’s comments aboard Air Force One about emptying Gaza of all Palestinians. Never mind that these people have occupied this territory for at least 6,000 years, arguably longer. Once nomadic tribes have settled down in recent centuries, built cities, hospitals, and schools. They have contributed to science, philosophy, and mathematics. They have homes and a deep, vibrant culture. And along comes the American Idiot who wants to ignore all that and make them all move. Obviously, he has no respect for people, their lives, and their history.
The same applies in our own country. Videos of the Tuskegee Airmen and women WWII pilots have been scrapped from Air Force training. The unconstitutional push to end birthright citizenship. The ridiculous assault on immigrants. People of sound mind would never consider the obliteration of history, culture, and civilization that is being pushed by this White House.
Across the street and one house to our North resides a multigenerational Latinx family. There are four generations living together in a three-bedroom house. Everyone works. By 7:00 each morning, they are all gone to various jobs, the babies to daycare. They come home and they keep working. They keep chickens that provide them with both meat and eggs. Everyone has a different assignment: cooking, cleaning, laundry, caring for the babies (of which there are now three). They own their house. The elder generation has lived there over 30 years. They are all US citizens. Yet, they are concerned that this administration might attempt to deport them.
For current generations, the future has never been more uncertain. We thought we were safe. We thought the Russians were the biggest threat to our lifestyle. We never considered that half of us would elect a brainless demagogue who has no respect for any of us. Today, there is no life in the United States that is not in danger, not from outside military forces, but from our own government.
One of the big issues during last year’s election was the price of eggs. One of the campaign promises that got Felonious Punk elected was that he’d bring those prices down. One week in, egg prices have gone up and so have other items such as insulin. The California Farm Bureau says fears in the Central Valley have led to migrant farm workers not showing up for work. This will result in higher food prices and a lower quality of life. Without access to affordable food, disease rates will increase.
Put all this together and it becomes clear that we need to, in the short term at least, take on a more survivalist mindset to how we live. One of the topics I think we need to revisit is gardening. Our last attempt, six or seven years ago, was an absolute disaster. We can’t even get weeds to grow in that part of the lawn now. What I’m thinking now is that we were on the wrong side of the house. Grass on the East side of the house grows significantly faster and thicker than anywhere else. That tells me that the soil there is, for whatever reason, more suitable for growing things. A garden might stand a chance of taking off.
Gardening with a survivalist mindset is significantly different from gardening for the pleasure of it, though. More thought has to be given to which crops produce the highest yield for the longest amount of time. Nutrient-dense vegetables like potatoes, sweet potatoes, kale, and spinach move to the top of the list. High-calorie crops, such as corn, beans, and squash, offer a significant energy source, which is important if we’re having to fight to survive. Plants like basil, oregano, echinacea, and chamomile can flavor your meals and provide natural remedies for various ailments. True survivalists look at perennial plants as well, but given Kat’s and my health concerns, I’m not sure planning that far into the future is worthwhile.
Survivalist gardening comes with its own challenges, starting with the amount of work that has to be put into making such a garden flourish. Working in the garden is relaxing for some people, but a survivalist garden pays attention to production rates and that means getting in there and giving plants the absolute best environment for growth. That takes a lot of time starting well before anything is planted. One has to pay attention to how things are arranged and planted, such as pole beans and tomatoes. The East side of our house gets more afternoon shade, so that becomes a factor as well. Do we have the energy that it takes to produce this type of garden? We may not have a choice. This could be a matter of survival.
Another challenge is what to do with everything one grows. Canning is a time-honored tradition in many homes and is great for preserving foods so that they’re available out of season. Have you ever tried canning, though? It’s hard work, takes an intense amount of time, and always carries with it the chance one might blow up the whole kitchen. Once the canning is done, one needs a place to store all the jars. We already don’t have enough space as it is! Where we would put everything is a serious concern.
Then, there are the dogs. For a long time, Kat has wanted to raise chickens. From a survivalist point of view, that’s a good idea. We could rather easily build a chicken coop along the South fence line. However, chickens have a bad habit of escaping from their coops, and dogs like ours have a bad habit of invading them. The garden would also need strong fencing to keep the dogs out. We didn’t do that with our last garden and I’m sure that’s one of the many reasons it failed.
While there are ways to meet most of those challenges, the answers tend to be expensive and money is another one of the things that we don’t have in abundance. The raw costs of fencing, fertilizer, and ground prep create a heavy row of red ink across the spreadsheet of profitability. Without a lot of hard work and high produce yield, there’s not much of an ROI in such a venture. Still, as the availability of food becomes more scarce and the prices continue to climb, by summer gardening may be the only way most people have of affording food.
We are fortunate to have enough space where gardening is even an option. People living in apartments have fewer choices and are likely to not be able to produce the amount of food their family needs. Community gardens can be an answer to that problem, but such planning needs to have already started and I’m afraid a large number of people won’t see the danger until their pantries are empty.
The challenges being thrust upon us are severe and unknown to current generations. We all thought was were well past the pioneer days of 150 or so years ago, yet here we are, needing to grow our own food and not certain that we won’t have to relocate later. While fighting the fascism of this administration is critical, we also have to give space to the need to survive in the here and now. If we only focus on one, we lose the battle for the other. The journey of the next four years is going to be exhausting even for healthy people, and Kat and I are not healthy.
As G considers his educational options, he’s leaning toward an option that would provide him with vocational training in construction or HVAC in addition to his normal coursework. Transportation is the biggest issue there as the nearest facility is in Fishers, where the buses don’t go. Still, with all the challenges of the future, he’s not wrong in thinking that one can’t count on a single form of employment being enough. A 40-hour workweek becomes irrelevant when one needs multiple jobs to survive.
Meanwhile, I’m sitting here in pain, struggling to breathe, and feeling envious of all the animals sleeping on my bed. There is a significant part of me that wants to give up.
There’s also a significant part of me that wants a waffle.
We’re going to need more coffee.
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